The Smith-Magenis Syndrome (SMS) Foundation UK

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The SMS Foundation is the leading support charity in the UK for children and adults living with Smith-Magenis Syndrome (SMS), a rare genetic disability due to a microdeletion or abnormality of chromosome 17. The Foundation is the authoritative voice for this condition and provides support for families and professionals living and working with SMS across the UK.

The Foundation was created by families, for families, and is fuelled by a heart-felt passion to ensure children, adults and their loved ones with SMS have the information and support they need to live life to the full.

Registered Charity 1186647.

Our mission statement

The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.

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